RESOURCES and LINKS


Links for Parents
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Archive: 2009 NCE:
Section on Home Care sessions: VA Home Care for Complex Chronic Disease

Home Care: The Next Frontier of Pediatric Practice

A Leg Up for Kids Foundation
Agency for Healthcare Research and Quality
Allergy& Asthma Foundation of America
American Academy of Home Care Physicians
American Academy of Pediatric Dentistry
American Academy of Pediatrics
AAP Policy Statement  -  Family Centered Care and the
   Pediatrician’s Role
 
AAP Policy Statement –  Financing of Pediatric Home Health Care

American Cancer Society
American College of Chest Physicians
American Foundation for the Blind - Midwest 
American Lung Association
American Medical Association
Americans with Disabilities Act – Information and Technical
    Assistance

Association of Birth Defected Children, Inc.
Association of Pediatric Oncology Nurses
Autism Research Institute

Caring for Caregiver
Center for Disease Control and Prevention (CDC)
CDC – Home Health Care  
CDC – National Home and Hospice Care Data

(CMS)Centers for Medicare & Medicaid Services
CMS – Home Health Agency (HHA) Center

Children with Diabetes
Children's Defense Fund
Choices for Parents - Hearing Loss
Council for Disability Rights
Cystic Fibrosis Foundation

Disabled Children's Relief Fund
Dreamms for Kids, Inc.  
Dream House for Medically Fragile Children
   
Dream House for Medically Fragile Children–Family for Keeps™

Epilepsy Foundation
Equip for Equality
Educational Resources Informational Center

Family Matters
Family Resource Center on Disabilities
Family Support Network of Illinois
Family Voices
Forward Faces: Helping Children with Facial Differences

General Pediatrics.com

Home Care Online – Pediatric Agency Locator 
Home Health Care Management & Practice (Journal)
Home Health Care Nurses Association

Illinois Assistive Technology Project
Immunization Action Coalition
Institute for Family-Centered Care

Joint Commission (The)

KidsGrowth.com
 
KidsHealth (Nemours)


Make a Wish Foundation
Maternal and Child Health
Mayo Clinic
Medical Doctor Net Guide
Medical Home
MedLinePlus

National Attention Deficit Disorder Association
National Association of Children's Hospitals and
    Related Institution

National Association for Home Care and Hospice
National Association of Pediatric Nurse Practitioners (NAPNAP)
National Center on Birth Defects
National Center of Medical Home Initiatives for Children
    with Special Needs

National Family Caregivers Association

National Disemmination Center for Children with Disabilities
National Organization of Rare Disorders
National Resource Center for Respite and Crisis Care Services

National Respite Network and Resource Center
Nursing Center

Office of Special Education and Rehabilitative Services
Our Kids

Pacer Center
Parent Centers: Technical Assistance ALLIANCE
Parents Helping Parents
PDR.net (Members only)
PDR Health
PICU Basics       

Society of Pediatric Nurses
Starlight Pediatric Network
Starnet
Social Security / SSI

The Arc
Tracheostomy Page   UCP - Advocacy

UIC
United Cerebral Palsy