Section on Hospice and Palliative Medicine
Welcome to the AAP Section on Hospice and Palliative Medicine (SOHPM) Web site! The site is under development with new information and resources being added on a regular basis. We invite you to look around and let us know about any additional resources or information that you would like to see.
Pediatric palliative care is care designed to meet the unique and special needs of children living with life-threatening conditions such as cancer, muscular dystrophy, cystic fibrosis, severe brain problems, complications from prematurity and birth defects and rare disorders, among other conditions. Unlike many other forms of medical care, pediatric palliative care recognizes that everyone in the family is affected when one member is ill. Therefore, pediatric palliative care focuses on the needs of the patient and family: parents, brothers and sisters and other members of the members of your suppport system. The focus of pediatric palliative care is to enhance the quality of life for all involved, in large part by preventing and alleviating suffering using the skills and knowledge of a specialized care team that includes doctors, nurses, social workers, chaplains, child life therapists, and others. Pediatric palliative care focuses on pain and symptom management, information sharing and advance care planning, practical, psychosocial and spiritual support, and coordination of care. > Learn more about palliative care
Palliative Care, Ethics, and the Estrangement of Emotions in Medical Practice
Pediatric palliative care and pediatric medical ethics have, for a variety of reasons, an overlapping relationship. In an article that appeared in Pediatrics in 2014 (available for free: http://tinyurl.com/PPC-PedMedEthics), Pam Nathanson and I traced some of the historical, cultural, social, and self-selection reasons for this overlap. In addition to describing both the opportunities and challenges of this overlapping relationship, we also proposed several ways to best manage this relationship. > Read more from the Chair
The information posted on this Web site is selected for its value and relation to palliative care and does not represent an endorsement or an official opinion or position of the American Academy of Pediatrics.