Section on Hospice and Palliative Medicine

Welcome to the AAP Section on Hospice and Palliative Medicine (SOHPM) Web site! The site is under development with new information and resources being added on a regular basis. We invite you to look around and let us know about any additional resources or information that you would like to see.

What is Palliative Care?

Pediatric palliative care is care designed to meet the unique and special needs of children living with life-threatening conditions such as cancer, muscular dystrophy, cystic fibrosis, severe brain problems, complications from prematurity and birth defects and rare disorders, among other conditions. Unlike many other forms of medical care, pediatric palliative care recognizes that everyone in the family is affected when one member is ill. Therefore, pediatric palliative care focuses on the needs of the patient and family: parents, brothers and sisters and other members of the members of your suppport system. The focus of pediatric palliative care is to enhance the quality of life for all involved, in large part by preventing and alleviating suffering using the skills and knowledge of a specialized care team that includes doctors, nurses, social workers, chaplains, child life therapists, and others. Pediatric palliative care focuses on pain and symptom management, information sharing and advance care planning, practical, psychosocial and spiritual support, and coordination of care. > Learn more about palliative care

From The Chair

September 2015

Advance Directives, Autonomy, and the Elisuve Authentic Self

People were upset.  The young man in the ICU bed, intubated, had muscular dystrophy.  He had been stable on his home regimen of nighttime BiPAP until last night, when he developed fever and mounting respiratory distress.  His parents drove him to the emergency department of their local hospital.  Confronting impending respiratory failure, he was intubated and then transported to receive ICU-level care. > Read more From the Chair

The information posted on this Web site is selected for its value and relation to palliative care and does not represent an endorsement or an official opinion or position of the American Academy of Pediatrics.

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