Section on Hospice and Palliative Medicine


Welcome to the AAP Section on Hospice and Palliative Medicine (SOHPM) Web site! The site is under development with new information and resources being added on a regular basis. We invite you to look around and let us know about any additional resources or information that you would like to see.


What is Palliative Care?

Pediatric palliative care is care designed to meet the unique and special needs of children living with life-threatening conditions such as cancer, muscular dystrophy, cystic fibrosis, severe brain problems, complications from prematurity and birth defects and rare disorders, among other conditions. Unlike many other forms of medical care, pediatric palliative care recognizes that everyone in the family is affected when one member is ill. Therefore, pediatric palliative care focuses on the needs of the patient and family: parents, brothers and sisters and other members of the members of your suppport system. The focus of pediatric palliative care is to enhance the quality of life for all involved, in large part by preventing and alleviating suffering using the skills and knowledge of a specialized care team that includes doctors, nurses, social workers, chaplains, child life therapists, and others. Pediatric palliative care focuses on pain and symptom management, information sharing and advance care planning, practical, psychosocial and spiritual support, and coordination of care. > Learn more about palliative care


From The Chair

February 2016

Intergenerations

Maybe I'm the only one, but some days when I am running around the hospital I feel remarkably young and spry, while other days I feel old and worn-out. I suspect, though, that I'm not the only one: that all of us live with a sense that our position on the timeline of life is a bit wobbly, shifting back and forth, oscillating between optimism and anxiety. And not just in terms of how we are doing physically or mentally, but also regarding how secure we feel about our careers, our abilities or accomplishments, and what lies ahead. > Read more From the Chair


The information posted on this Web site is selected for its value and relation to palliative care and does not represent an endorsement or an official opinion or position of the American Academy of Pediatrics.

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