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Information for Families

In The Spotlight

Family Centered Care of Infants with Neonatal Abstinence Syndrome

Neonatal Abstinence Syndrome (NAS) is the medical phrase used to describe infants who withdraw from substances to which they were exposed in utero. There are a number of maternal medications, most prominently opiates (prescription pain medications) as well as illicit substances (such as heroin), that when taken during pregnancy, can cause this syndrome. Nationally, NAS has become an epidemic with tens of thousands of substance exposed infants born each year. Traditionally medication has been used to treat NAS, however there is increasing evidence of the benefits of non-pharmacological treatment, most of which can be provided by the infant’s family themselves. In a recent article, Dr. Newman and colleagues at Queen’s University in Kingston, Ontario, demonstrated the power of family-centered care for the treatments of infants with NAS.

Rooming-in Care For Infants of Opioid-dependent Mothers »

Vermont Oxford Network (VON)

The Vermont Oxford Network (VON) started a multicenter quality improvement collaborative focused on the care of patients with NAS and their families. Their work started in 2012 and included participation from 199 centers in VON, as well as several statewide collaboratives focused on this topic. This effort resulted in both reduction in the days of treatment and days of hospitalizations for babies treated with NAS. Their results are summarized in their recent publication in the journal Pediatrics

Improving Care for Neonatal Abstinence Syndrome »


Jewish Family & Children’s Services

Jewish Family & Children’s Services (JF&CS) is a Massachusetts based organization that provides support services to vulnerable populations. They have been in existence for over 150 years and provide services to people of all faith. Among their resources, JF&CS have put together a list of different websites (with brief descriptions) that offer support for parents of premature infants.

Preemie Parent Alliance Resources »


March Of Dimes

March of Dimes, an organization dedicated to the health of every baby has developed an informational webpage for families of infants with NAS. It includes information on the symptoms that infants with NAS experience as well as signs families and staff may observe. It also has helpful tips on caring for infants with NAS as well as the most common treatment approaches.

March of Dimes »

HealthyChildren.Org is a website supported by the American Academy of Pediatrics with a plethora of resources for families and physicians. Since March is National Nutrition Month, we want to lead you to the website where you can explore great options that will help promote your physical and emotional health.

Healthy Children »

NICU Journal:
A Parents’ Journey

Tab 7: Glossary of NICU Terms

The last section of the “NICU Journal” is a comprehensive glossary of NICU terms that includes both medical and colloquial words you may hear in the NICU. The section is organized in alphabetical order with short, concise definitions.

Tab 1: Getting to Know Your Baby »
Tab 2: Journaling »
Tab 3: Taking Care of You »
Tab 4: Journey Home »
Tab 5: Developmental Milestones »
Tab 6: Common Conditions, Concerns, and Equipment in the NICU »
Tab 7: Comprehensive Glossary of NICU terms »

Ordering information »



@ AAPnicu

AAP Perinatal Section Families Page now has a twitter account to help disseminate some of our health information for families of NICU graduates. Please follow us on Twitter@AAPnicu (AAP NICU Families).

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