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Information for Families

In The Spotlight

January is Birth Defects Prevention Month


Birth defects affect 2-4% of births in the United States and have developmental, social, and financial implications for the patient and the entire family unit. Education and support are part of what providers can do to help all families to increase their changes of all women, including teens, to make healthy choices that increase their chances of having a healthy baby. The National Births Defects Prevention Network has lots of materials regarding education and awareness, available in both English and Spanish.

More information »


Healthy Beginnings for Babies

In an effort to increase awareness around the importance of well-baby/child visits, including following the recommended vaccination schedule, National Healthy Mothers, Healthy Babies Coalition has developed “Healthy Beginnings for Babies”. The website provides a booklet for families, in English and Spanish. It reviews all the routine visits in the first year, with some interesting facts of what to expect and how to help make the visit more productive.

More information »


Preemie Voices

Dr. Saroj Saigal

A new book has been written by Dr. Saroj Saigal entitled “Preemie Voices”. It captures the experience of premature infants, including their challenges and achievements. These babies were born in the late 1970s, at McMaster Hospital in Hamilton, Ontario, where Dr. Saigal is a Professor Emeritus. Coupled with the book is a short documentary video (25 minutes) on the website that highlights 10 of those babies in a bit more detail. The video and book are filled with powerful messages for both NICU providers and families, including what life is like for our patients down the line. For more information, go to the website.

Preemie Voices »

NICU Journal:
A Parents’ Journey

Tab 7: Glossary of NICU Terms

The last section of the “NICU Journal” is a comprehensive glossary of NICU terms that includes both medical and colloquial words you may hear in the NICU. The section is organized in alphabetical order with short, concise definitions.

Tab 1: Getting to Know Your Baby »
Tab 2: Journaling »
Tab 3: Taking Care of You »
Tab 4: Journey Home »
Tab 5: Developmental Milestones »
Tab 6: Common Conditions, Concerns, and Equipment in the NICU »
Tab 7: Comprehensive Glossary of NICU terms »

Ordering information »



@ AAPnicu

AAP Perinatal Section Families Page now has a twitter account to help disseminate some of our health information for families of NICU graduates. Please follow us on Twitter@AAPnicu (AAP NICU Families).

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